Thursday, April 10, 2014


Not really much info.

We know her nerve damage is just outside the spinal cord low on her back.  We know there is a "clump" of nerves.  The big punch in the gut was that her nerves continue to be getting damaged.  We do not have a cause.  I feel like we are in limbo land big time.  I also felt a bit like her neurologist is done.  We were refereed to a neurosurgeon.  So many questions with very little answers.  I will continue to push for more.

We are scheduling a wheel chair evaluation.  This girl of mine falls ALL the TIME.  Probably 20-50 times a day.  She did just get a AFO but at age 9 learning to use it may be part of the problem.

Sorry this is a boring post but I just wanted to get it written down.  


Cheri said...

For some reason I just prefer definite answers. I hate not knowing. Thanks for sharing the update of your sweetie.

Anonymous said...

Praying for your little girl and I hope you got some answers since your last update.

God bless